MY STORY

Behind Steady

For twelve years I was a commercial airline pilot. The job I'd wanted my whole life, and most days it genuinely didn't feel like work. Then my body decided to have other ideas.

The first sign was my vision — squinting to focus on small details, which I blamed on long days and tired eyes. I got glasses. Turned out I didn't need them. First clue, thoroughly ignored.

Then came the brain fog. Losing simple words mid-sentence, which wasn't like me at all. I got quietly good at covering for it. After that, pins and needles, and a spreading numbness in my legs. So I did what most of us do when something feels off — I ignored it for a few months and hoped it would sort itself out. It did not.

Eventually I saw a back specialist, convinced it was spine-related (an occupational hazard of sitting in a cockpit for a living). He scanned me, told me my lower back was perfectly fine, and gently suggested I get an upper spine MRI. From there, everything snowballed. More scans. Brain and spine. A referral to a neurologist. And then, after all the tests and waiting rooms and polite medical small talk, the sentence that splits your life into a before and an after:

"You have multiple sclerosis."

Being a pilot, my first instinct was to fix it. Fail to prepare, prepare to fail. I went straight into research mode — and straight into the Google wormhole at 2am, reading worst-case scenarios and forum posts that had absolutely no business being read at 2am. It's a very efficient way to terrify yourself, if that's something you're looking for.

I had to stop flying. Pilots are required to report any change in health to their aviation doctors, and that chapter of my life paused overnight. It's been a strange kind of quiet — figuring out what comes next, what this version of me wants to do with itself.

Somewhere in that stillness, I kept coming back to the same thought: I would have given a lot for a calm, structured place to land in those first weeks. Not another forum. Not a wall of medical jargon. Just somewhere to breathe, get oriented, and feel like a real person was on the other side of it.

That's what Steady is.

"The first version of the story you tell yourself is rarely the one you end up living."

I've been on Kesimpta since 2023 and have been relapse-free since. I still have some numbness in my left hand and leg on tougher days, and the brain fog and fatigue make occasional uninvited appearances. But exercise, eating well, and generally looking after myself have made a bigger difference than I expected. It turns out the boring advice is usually the right advice.

If you've just been told the same words I was — take your time here. Read a little, close the tab, come back tomorrow. You're not on your own in this. 🧡

What I take

A few things that have become part of my daily routine.

This is not medical advice. These are personal choices that work for me — everyone with MS is different. Always talk to your neurologist or GP before starting any supplement.

  • Vitamin D3 with K2

    Taking 5000IU daily. Low vitamin D shows up a lot in MS research, and pairing D3 with K2 helps the body actually use it. I take it every morning without thinking about it now.

    What the research suggests: Low vitamin D levels are consistently associated with higher MS risk and increased relapse activity, and trials are exploring whether supplementation can reduce disease activity. K2 is often paired with D3 to help direct calcium into bone rather than soft tissue.

    Learn more (MS Society UK)
  • Creatine monohydrate

    I actually started this purely for the mental clarity and fatigue — and I've personally noticed a real difference in both. Any strength or energy benefits were just a bonus.

    What the research suggests: Creatine is one of the most studied supplements in sports science, and emerging research points to potential benefits for brain energy metabolism, cognitive performance under stress, and fatigue — areas of obvious interest in MS, though MS-specific trials are still limited.

    Learn more (Nutrients journal)
  • Alflorex probiotic

    This one has genuinely helped me with gut health and inflammation. Worth trying if your stomach has been off.

    What the research suggests: Alflorex contains the Bifidobacterium longum 35624 strain, originally developed at a university research centre and studied in clinical trials for IBS symptoms like bloating and abdominal discomfort. The gut–immune connection is an active area of interest in MS research more broadly.

    Learn more (Springer — Probiotics and Antimicrobial Proteins)
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